Day two hundred and two (Radioactive Idione Treatment)

On Monday, April 20th at 10:30am, I had made the choice to treat the return of my Graves disease with Radioactive Iodine treatment.

With all the ups and downs for the past 5 years including barely a year of remission, I can say with relief I am cured.

Last week I was in quarantine mode for a whole week to rest, relax and just be lazy. Now I’m ready to go back to work full force! Though with some unforseen circumstances with my autoimmune system disease, it has impacted another part of my health. So I’ll have to deal with that shortly.
In a months time I’ll be visiting the endocrinologist again to start Thyroxine medication and see how that goes! I’m excited and relieved, and am looking forward to the next chapter of my life Graves disease free.

Day Forty Nine

I went to the GP today to check out my sunburn that I haven’t been taking care of… whoops. I just returned from the Great Barrier Reef and my shoulders are not healing from my previous sunburn. So that’s a litttle background – the GP asked me about my Graves Disease and how it is very common these days that people are being diagnosed with it. I told him it took me a good whole year to be diagnosed because no doctor could figure out what was wrong with me. One doctor thought I had a heart problem.. another just couldn’t figure out what was wrong..until I went to a third doctor he finally gave me the right diagnosis and medication to manage it. By the time I was diagnosed.. there was already a path of destruction.
Today’s GP told me about a lady he recently diagnosed.. he said her work life was suffering and her whole world fell a part.
I know how that feels.. sometimes I feel it on a daily basis and I can’t do anything about it. The pills.. yoga.. paddleboarding.. the beach.. it doesn’t get rid of the way I feel inside. And my reactions to certain stressful situations.
He told me after he managed her thyroid – her work life improved and her life started to have balance again.
Sometimes I feel like breaking down and wishing I was normal.. but what is normal when I feel like this all the time?
I hope by my birthday next year I’ll be better again.. I want my work life to improve and I want my life back. I’m just really fortunate that my friends are supportive.. deal with me when I go crazy and deal with my crazy ideas..
I’ll just go with the flow for now.

Day Thirty Eight

Some days I feel like I’m going to explode… and some days I feel like I’m going to implode.. most of the days I’m tired no matter how many hours of sleep I have. I am a deep sleeper so I have no problems with sleep, but no matter if I sleep for 6 hours, 10 hours or even 12 hours.. I can’t get to a point where I am not feeling like a sloth. So tired and slow.

I must admit that this time around my Graves is managed better.. With my anxiety and stress attacks I know what my triggers are and what to avoid and how to manage it. Work has been a challenge here and there but this time around I am not over asserting myself to the point of being completely drained.

My health and life is much more important to me.. so my priorities have changed since 2010 when I was first diagnosed with Graves. I am more carefree and go with the flow most of the times.. no more time “nazi”.. I take my time, I never rush to go anywhere and I hardly ever stress over trivial matters. *phew*
I am forever grateful that my friends are supportive of me and understand my symptoms…they are patient and very willing to lend me a shoulder to lean on. My family also know what to do this time around.. they are unconditionally taking care of me and making sure I am coping.

Some days I don’t feel like coping.. Some days my hair is falling out like crazy… Some days I am a mega bitch to deal with.. oh it doesn’t help that I get stuck “in my ways” and I need to step back and breathe!! Hahaha!!

Today I went to the endocrinologist and my PTU pills have been increased to 8 pills a day instead of 4. I’ll have to take 2 at breakfast, 2 at lunch, 2 at dinner and 2 before bedtime.
PTU is the most foulest tasting medication ever known to mankind. Ewwww!!~~~ I’m just looking on the bright side.. at least it’s not 12 pills a day!

So that’s my update.. I am.also suffering from hayfever..Gah!!~

Day One.

The bitter taste of PTU and having a mini breakdown is not so welcoming with the return of my Graves’ disease. Yesterday I found out that my Graves’ disease is back in action, and I had to immediately take my medication again. I knew what to expect but being sick again really sucks, I wasn’t able to relax and ended up having a mini breakdown .. Not good at all. Today, I had a break from work so I could have a proper amount of sleep – I ended having 5 hours broken sleep but I plan to go to bed early tonight. I also started my medication again, four pills a day this time around. At least it wasn’t like before… There was one point in time I was taking 12 pills a day. I plan to still continue my active life and yoga.. But will just take it easy if I get tired. And yeah, let’s just see how it goes…

I must admit the support I’ve had this time around is unbelievably heart warming, my friends are so sweet for putting up with crazy ole me. It’s a good thing I’m a weirdo already :) thank you and goodnight.

The day that it came back into my life..

It has been less than a year since I last blogged here, and I am back to share my progress and update you all on what is going on in my life.

Firstly, I would like to share some good news – I recently returned from a solo traveling trip to Hawaii and it was such a mind blowing experience for me to be able to do what I love i.e. paddle boarding, in a foreign place that offers so much! The water is crystal clear and the weather is like an endless summer. Perfect!! I also encountered a sea turtle while I was out in the ocean, and we were so close to each other! Then it swam away haha!

Secondly, work is treating me well, I am still in the same job as a Community manager doing my best for enterprise social. So it’s all smooth sailing, oh and I have achieved my goals before I turned 29 this year (in May)! Next up is to knock off some more goals before I turn 30!

Alright let’s get to the juicy part. Last week I went for a blood test to check my thyroid because I was weary of some symptoms that have returned. The symptoms included: hair loss, tiredness, memory lapses, stress and anxiety (very mild though!!) .. These days it takes A LOT for me to be stressed out, like you would not believe the comparison to when I was first diagnosed with Graves’ disease. I’m able to handle stress/anxiety much better now! ~

I received a phone call from my medical centre two days after my blood test was done – this is clearly not a good sign.

Today I went to my doctors appointment to see what’s up? with my thyroid – and as expected, they were out of whack again.

*long sigh*

This week I am going to see my¬†endocrinologist as soon as possible, and see what we can do from there to manage my Graves’ disease.

So it’s back. I feel like I am bouncing off the walls lately, I am all jittery and ready to just take on whatever comes at me. My doctor who first diagnosed me with Graves’ disease is now retired and living in the country side, he was the best doctor! However I know have 3 other doctors to take care of me haha, yeah 1 isn’t enough! My doctor today did a reenactment of what it is like to suffer from Graves’ disease – he was wobbling around like a lunatic and said “This is how you must feel right now!” – it cracked me up!! LOL!!

I am going to try to stay lighthearted about it, at least this time I know what to expect and how to manage it Р#1 take care of myself no matter where I am and what situation I am in. Relax. Breathe deeply and carry on! ~

The day that it is all over.

Hello to everyone out there who reads this blog on my journey with Graves’ disease! On Monday the 16th of December 2013, I visited the endocrinologist to find out the results of 1 year of not taking any thyroid medicine. And guess what?

I don’t have Graves’ disease anymore.

It’s gone. This is the best news I’ve heard all year, I was able to maintain my weight, my diet and fitness without any effects of Graves’.

So what is the next steps for me? I will be visiting the endocrinologist once a year from now and on, for check ups in case it returns, and I will have blood tests every 6 months to make sure everything is fine too! I am very excited about knowing this, as I haven’t been sick.. I didn’t even get the flu this year (even without a vaccination!!) I can still eat whatever I want too!! Hahaha!~

Personally, my future involves keeping up my exercise routine of swimming and yoga. I may even be joining a biathlon next year on a weekly basis!! During the Christmas break, I’ll be going to a yoga retreat in the mountains which I am looking forward to. And plans for travelling next year… :)

To everyone who has been diagnosed with Graves’ Disease – I wish you all the best. No matter what, time heals.. be patient, be persistent and be the best you can. If the medication does not work, consult your doctor for alternatives to manage your thyroid. :D

Day # – Half year post in 2013

Hi everyone,
It’s been a pretty long time since I’ve posted and kept this blog alive. As life gets busier and busier of course I have to neglect the one place that I used to find comfort in – this blog! I have returned for a long awaited update.

In June, I went to the endocrinologist for my check up since I have been taken off all medication for my thyroid since December 2012. My blood results were outstanding! No problems with my thyroid, TSH, T1, T2, liver functions, glucose and vitamin D. So that is a huge, HUGE sigh of relief. I am successfully going through remission of my Graves’ disease and plodding along in life as usual.

So what’s been happening in my personal life? In the past year, I have moved onto a Community Management role at work taking care of the intranet and SharePoint collaboration sites. It was a big leap from what I used to do, and this leap has opened doors of learning experiences and opportunities for the future. As always, work is a high priority in my life, I take it so seriously that sometimes I burn myself out from it – this week I got a cold from so much work and not enough rest. So I spent a few days to rest and now I am better~! :) Since I have been getting better with my Graves’ I have noticed that my immune system is MUCH better – getting sick and then recovering really quickly is the BEST. No more whinging about about the world ending because I am sick. HAHA! Well there’s always whinging but less of it now that I am healthier than before!

Since late last year, I have been going to swimming classes at least once a week and I have been going to yoga classes for the past 5 months now. My body is healthier, flexible and feeling good. I am able to touch my toes!! Which is something I wasn’t able to do years ago..! *achievement unlocked* HAHA!

I am also going to the gym at least once a week for the past 3 months, my weekly schedule is yoga, gym, swimming, gym, then partying. Yup! Yoga and gymming helps tremendously with anxiety and stress – so all those who have GD – I suggest doing yoga.. and keep at it!!

What’s next for me? Lots of learning, researching and experiencing. In August I will be going on my first snow trip EVER!!~~ So I get to see snow for the first time, very excited! So that’s all folks – health is good, life is good.

Enjoy life while it lasts.